New report from FutureNeuro and RCSI makes recommendations for roll out of national strategy for genetics

A report published today highlights the priorities and needs of patients affected by neurological disease, as well as clinicians and researchers, to inform the implementation of the HSE’s National Strategy for Accelerating Genetic and Genomic Medicine in Ireland. The report captures dialogue from a multi-stakeholder consultation led by the SFI FutureNeuro Centre and RCSI University of Medicine and Health Sciences PPI Ignite Network in partnership with IPPOSI (Irish Platform for Patient Organisations, Science and Industry).  

There are over 800,000 people in Ireland living with a neurological condition, which presents a significant impact on health and quality of life. The ‘Deliberative Dialogue on Genomics in Neurological Healthcare and Research’ report launched today sets out recommendations aimed at ensuring the upcoming implementation of the Irish national genetic and genomic service incorporates the perspective of people living with a neurological condition, families, clinical and research stakeholders.