First Authorised Epidermolysis Bullosa Treatment Made Available in Ireland

First Authorised Epidermolysis Bullosa Treatment Made Available in Ireland in ‘Transformative Moment’ for Patients

The first authorised treatment for epidermolysis bullosa in Ireland has been made available, marking a major milestone for patients living with the painful rare skin condition.

The first authorised treatment for epidermolysis bullosa (EB) in Ireland has been made available here, marking a ‘transformative moment’ for those living with the agonising condition.

Debra, which supports 300 people living with the incurable skin condition in Ireland, described the HSE’s move to make Filsuvez available as an important step to ease the lives of those living with ‘Butterfly Skin’.